Let's talk about feelings today. The ones that no one ever talks about. I'll start by telling you about how one of our favourite nurses used to force me to sit outside on her lunch hour. She'd often sit with me, or make me promise that I'd be there by the time she came back. (One time I wasn't, because a bird pooped on my arm lol! And everyone on the unit knew I was back early and gave me crap about it - no pun intended lol!) But I used to sit outside, on the NW corner of SickKids, close to the entrance in case I had to run back in… forcing myself to get some air, because everyone was saying that I had to. I'd watch the birds, squirrels, and people walk by. I hated watching people walk by. I hated seeing mom's with their strollers and their healthy babies, oblivious to what was going on just steps away inside SickKids. I hated seeing UppaBaby strollers that looked like mine on the sidewalk - where mine should be, but isn't. I was so damn mad at the people who could just get up and walk around, who could feel the air and the sunshine. Who could literally just pick up their baby or child and buckle them into a carseat and take them anywhere, at any moment, with nothing to worry about. Why do these people get to walk around with their healthy child and I don't?! They have NO idea what is going on behind those walls. Look at her with her Starbucks, her purse, her shopping bag. Going home to sit on her couch, cook dinner, play with her baby. Sleep in her own damn bed. How is any of this fair?! I used to HATE sitting outside. I felt robbed. I felt robbed of every experience, even something as simple as feeling the summer air on our faces. Adam doesn't get to, he's stuck in an obs room tethered to the wall with monitors and suctions. We were robbed of so damn much. Spring. Seeing the flowers bloom. Summer. Going to cottages, playing in the sand, boat rides. Events. Concerts, weddings, celebrations. Holidays. Our first Mother's Day and Father's Day were spent in a hospital room. We didn't celebrate our first Thanksgiving. But it was the simple things. The walks. The car rides. The fresh air. The wind. The sun. The birds and the squirrels. We were so robbed. And going back into SickKids was just as bad. Because after feeling all of those hurtful, angry, sad, depressing, frustrated feelings… I'd walk back in and then feel guilt. Guilt because I will get to go home. I'll be the one who is picking up my son and strapping him into a carseat at any given moment. Taking the stroller out and breathing the fresh air. The guilt was consuming. Because all of the anger I just felt, was like a slap in the face once I walked through those doors and saw parents with children who were sicker than Adam. Who may not ever make it out of those walls. Who are bound to a wheelchair. AND HERE I AM AGAIN THINKING, "Kayla you get to experience it, you're home now, stop complaining"... Comparative suffering. It's a bitch. Don't do it. It gets us nowhere. We are ALL entitled to our feelings. Our pain and suffering is SO VALID. No matter what. There will always be someone who has it worse than us. But in the kindest way possible - that's not our story to worry about. We need to focus on our own. We need to acknowledge our own pain and our own suffering and validate our own feelings. No one can tell you how to feel. No matter what those feelings are - they are real, they are valid. They are yours. Own them. I literally just had this conversation with my therapist, and it was one that really hit hard. You don't need to compare your suffering. Your feelings are real, and they matter. Even those feelings of hate, jealously, pain, suffering, guilt. They're valid, even if we don't want to agree with them. Brene Brown has a podcast episode dedicated to comparative suffering.
https://brenebrown.com/podcast/brene-on-comparative-suffering-the-50-50-myth-and-settling-the-ball/ Even just googling it, there are a ton of resources, opinions, and experiences. It helps knowing that we are not alone in our thoughts and our feelings, even if we are validating them for ourselves, it's always nice to know there are other people who 'get it' and that we are not alone.
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